Embracing the Night: My Journey to Conquer Sleep with Fibromyalgia

Embracing the Night: My Journey to Conquer Sleep with Fibromyalgia

Fibromyalgia Sleep Help

Finding the right rhythm to dance with sleep when you live with fibromyalgia is like trying to choreograph a ballet in a room without gravity. It’s been over 2 years since I began this intricate dance of medications, sleep studies, and strict bedtime routines. And let me tell you, it’s been nothing short of a journey paved with patience, persistence, and a few too many sleepless nights.

Fibromyalgia Managing Fibromyalgia Sleep Medication

Let me take you back to the beginning, about nine months of trial and error, to be precise. That’s how long it took to find the right combination of medications to help turn off the part of my brain that’s perpetually ready for a fight-or-flight marathon. If you’re nodding along, you might know the feeling — like sleeping with one eye open or waking up as tired as when you hit the pillow.

Sleep Study Experience

Then came the sleep study, an intimate tango with a watch that tracked every toss and turns for a month. The data was eye-opening; seeing the breakdown of my sleep stages was like reading a story where the hero never entirely managed to save the day. So, I invested in my watch, a vigilant sidekick in my quest to improve the elusive deep sleep.

Sleep Routines for Chronic Illness

But here’s where the plot thickens: the sleep routine. Imagine setting an unyielding schedule for sleep and wake times — yes, even on weekends. That meant leaving gatherings early and starting my bedtime ritual an hour and a half before my head would grace the pillow. It sounds like a party pooper’s manifesto, but it was my ticket to dreamland.

What did this ritual involve? Picture this: no buzzing electronics. Instead, my living room transformed into a serene space for low-impact exercises, transitioning from yoga to gentle stretches, followed by a tranquil meditation. The final act was thirty minutes of dimmed lights, a dose of vitamins and medication, and losing myself in the pages of a book until my eyelids begged for mercy.

It wasn’t just a routine; it was a commitment. A commitment that meant temporary evenings apart from my partner, missing out on nighttime laughs, and the occasional feeling of FOMO. But here’s the kicker — it worked. After about nine months, my internal clock wasn’t just ticking; it sang harmoniously.

Fast forward a year and a half later, and my nights are no longer solo acts. I have more flexibility with my sleep hours and no longer need the isolation to find my snooze. But don’t be fooled; it’s a delicate balance. The moment you skip a beat, the whole routine can come tumbling down.

Managing Fibromyalgia

So, here’s a piece of heartfelt advice: Keep your nighttime routine sacred. Power down those screens an hour before bed and indulge in activities that bathe your mind in calmness. This is not a time for planning or ticking off to-dos. This is your time to unwind, to let go, and to prepare for the rest that you deserve.

Give these few mindful techniques if you are starting your own sleep routine:

  • soft music

  • meditation

  • mindful coloring/painting

  • mindful doodling

  • journaling/art journal

  • yoga

  • stretching

  • low-impact exercises (should only be done if starting your routine an hour and a half before bed and it is your first 30 mins)

  • Progressive muscle relaxation

Sleep, especially with fibromyalgia, is a journey, not a destination. It’s about finding what works for you and sticking to it, even when it feels like you’re swimming upstream. And if you ever feel like you’re struggling alone, remember that there’s a community out here, myself included, paddling along with you. Together, let’s turn our nights into a restful retreat, one peaceful dream at a time.

Chat soon,


Sleep Like a Dream: Unleash the Power of Mindfulness for Restful Nights!

Unleash the Power of Mindfulness for Restful Nights!

Do you dream of a good night’s sleep that leaves you feeling refreshed and ready to conquer the day? For individuals living with chronic illnesses, quality sleep is even more essential. That’s why we’re here to dive into the magical world of mindfulness and its transformative impact on rest. Get ready for practical tips, delightful techniques, and a sprinkle of fun to help you achieve the restful nights you deserve!

1. Understanding the Sleep Struggles:

Living with a chronic illness can bring unique challenges to your sleep patterns. From pain and discomfort to racing thoughts and medication side effects, it’s no wonder sleep can sometimes feel like an elusive dream. Lack of restorative sleep can further impact your overall well-being and ability to manage your condition effectively. Recognizing and addressing these challenges is essential to improve your sleep quality and overall health.

2. Embrace the Magic of Mindfulness:

Enter mindfulness, your sleep superhero! With its powers of calm and relaxation, mindfulness is here to save the night. Let’s explore how it works its wonders:

a. Mindful Moments: Unwind your mind with mindfulness meditation techniques. Take a few moments before bed to focus on your breath, observing the sensations as you inhale and exhale. Engage in body scan exercises, where you systematically bring attention to each part of your body, releasing tension and inviting a sense of relaxation.

b. Zenful Zzz’s: Picture this—progressive muscle relaxation and guided imagery gently transport you to a peaceful state of bliss. Start from your toes and work your way up, consciously relaxing each muscle group. Engage your imagination by envisioning quiet scenes like a tranquil beach or a serene forest, allowing your mind to let go and embrace the moment of tranquillity.

c. Sleep Sanctuary: Create a sleep sanctuary fit for royalty! Harness the magic of mindfulness by establishing a soothing bedtime routine. Incorporate activities that promote relaxation, such as taking a warm bath, reading a calming book, or practicing gentle stretching or yoga. Dim the lights, eliminate electronic distractions, and ensure your sleep environment is cool, comfortable, and free from noise.

3. Get Your Sleep Party Started with Fun Tips:

Now, let’s sprinkle some excitement into your sleep journey with these engaging tips:

a. Bedtime Bliss Playlist: Curate a playlist of your favourite calming tunes to whisk you away to dreamland. Soft melodies, soothing nature sounds, or gentle instrumentals can be the secret ingredient for a sleep-filled symphony. Explore different genres and find what resonates with you.

b. PJ Party: Embrace your inner child and rock those comfy pajamas! Treat yourself to snuggly sleepwear that makes bedtime feel like a cozy adventure. Whether it’s fluffy onesies, silky robes, or oversized t-shirts, find what makes you feel relaxed and ready for dreamland.

c. Dream Journaling: Capture the magic of your dreams by writing in a dream journal! Keep a book and pen on your nightstand, and as soon as you wake up, jot down any memories or impressions from your dreams. This practice can help you explore your subconscious, gain insights, and unleash your creativity.

Say adios to sleepless nights and hello to sleep like a dream! By incorporating mindfulness into your sleep routine, you can unlock the secrets of restful nights and wake up feeling refreshed. Remember, this journey is unique to you, so experiment with different techniques, have fun with it, and celebrate the small victories along the way.

Wishing you nights filled with blissful slumber, mornings brimming with renewed energy, and days filled with vitality. Sleep tight and dream big!

Until next time!